Logan and Amanda and AJ are at our home for a few days respite from the hospital between chemo rounds. We are thrilled. A whirlwind of activity ensued yesterday evening when I got the call that they were being discharged. I drove down to help extricate them from the hospital room, and it reminded me of picking up kids from college at the end of a term. So much stuff. The current plan is readmission on Monday for round 2 of chemo. But of course that could change as biopsy results come through. The picture above is Amanda giving Logan evening meds through his feeding tube.
Logan had both a bone marrow and a spinal biopsy on Monday and he came through those procedures wonderfully. Final biopsy results are pending to see how the chemo performed, and to make any chemo drug adjustments for the next round. One of the biopsies is sent to Seattle for analysis which causes some delay.
Donna was tasked with administering one of Logan’s meds this morning at 4am. I woke up about 5am and took over rocking him . Around 5:30a both Amanda and Donna woke up and we all had the same thought that Tylenol was needed for his teething. Amanda and Donna went back to sleep, and AJ woke up soon after and started Logan’s morning feed. I learned that AJ was up a couple of times last night as Logan’s oxygen alarmed – but that was worked through. I know that Amanda and AJ got more sleep than they did in the hospital, so that is good. And me and Donna got to rock with Logan. And Logan is free to explore the house, much different that the restrictive 4×6 foot sterilized play area in the hospital. All wins.
I’m thankful for all of you to have some time away from the hospital. Logan is so adorable! Thanks for sharing the pictures. Peace be with you all!
So glad he’s able to be with his mimi and papa before it starts all over again. Continued in my thoughts and prayers!