My grandson Logan received a feeding tube yesterday. He was not eating, and so Amanda and AJ agreed to it as a necessary part of the treatment. It’s just another thing that we were not aware could become needed. He is just a baby, and the idea of a feeding tube just does not make sense to him. And so, this morning at 3am, Logan pulled it out.
Truth is, we don’t know anything about this whole ‘leukemia treatment’ journey. Haven’t travelled it before. So my expectation that things would improve after round 1 chemo was complete on Sunday was flat out wrong. After chemo stopped, he would get worse. Logan will feel bad for the next several days before he might start feeling better. This all just sucks, and I realize that these posts are a difficult read. They are difficult to write, too; thank you for sharing the journey with my family.
The effects of the chemo poisoning of his 10-month-old body are continuing, severe, and heart-wrenching. He started retaining fluids, so Lasix was prescribed. Logan had trouble eating because of throat sores, so morphine was prescribed. He is lethargic. I was so happy to see him playing yesterday evening via FaceTime. That only lasted about 10 minutes before he got tired and fell asleep in AJ’s arms as I watched his eyes flutter closed. Please continue to pray for him.
Hospital therapy is offered to help Logan in his development while there. Actually providing the services is difficult because, well, he is asleep a lot. Music therapy did successfully visit yesterday and he loved it. Speech and physical therapy are trying to make it happen. I had not even considered the need for such therapy, it certainly makes sense, and I am grateful for it. Grateful for the hospital staff working to balance treating the disease and continuing Logan’s development.
Thank you Big John for continuing to post. I’ve struggled with what I am willing to share as that makes it more real. We are in for many ups and downs and through God’s grace we will get through this trial.
My heart and prayers are with you…thank you for sharing. Storming the gates of heaven on Logan’s behalf!!!🙏🙏🙏❤️❤️❤️
We sorrow with you , cry as you cry, and do not understand why. Thanks for allowing us to journey with you. I cry as I read it, can’t imagine the emotions you must be feeling as you witness the experience into written story.
And we hope. We pray. And we will smile as you smile. Praying the chemo does what it supposed to be doing in Logan’s body without residual damage, and praying hope and rest into Amanda and AJ’s spirits as they love Logan, and each other, through this. And prayers for you and Donna.
Glad the healthcare team is putting all resources into action🙏🏼
🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
Please know I look forward to any updates on Logan’s journey on this very difficult trial. My heart is with you in much prayer for his complete recovery.
We are all here to support you, so please know you are not alone. No one should have to endure this pain you are going through. Sending you all prayers, love and healing.
Hi John and Donna,
All our prayers to Logan on his journey fighting and beating this horrific cancer. He is a true Beatty…a fighter and will beat Leukemia. Send our thoughts and prayers to Amanda and AJ.
Tim and Laura